Wednesday, April 10, 2013

Where did March go?! I’m pretty sure it flew by in the blink of an eye. On top of a busy treatment schedule, I’ve been busy with school. Maybe that is where the month has gone. I’m not complaining because I’m one month closer to graduation. We’re almost at the one month to go mark! Watch out- - I might run across the stage! I’m checking items off the to-do list as I finish things up and it’s definitely a good feeling.

Last Saturday I was able to take a much needed break an attend Dubs on Defrost (DOD), a VW car show. For anyone that knows Chris or me, they know it’s one of our favorite things to do in the coming months. While we were at DOD, there was another very important car show (WiTW – Wookies In The Woods for those that don’t know J) being attended by some of my biggest fans. I’m not sure that thank you is enough for all of the generosity, thoughts, prayers and support. In addition to the support, I was honored by the amount of funds raised. While I owe a HUGE thank you to Abe, I know there were many people behind the scenes. All in all, I’m honored to say the least. In addition to saying thank you, I just wanted to let you know that a good portion of the money will be going to a fundraiser that I’m partaking in. I’ll be using it to ride in the, “Closer to Free” (http://www.rideclosertofree.org/) ride in September to support Smilow Cancer Hospital where I receive my treatment. I’ll be riding 25 miles! Once again, thank you for all of your support. I truly feel honored to be part of the VW community and look forward to attending WITW in the coming years.
Well I just wanted to check in, say hi, and send out a special thank you! Starting a new treatment phase and school has proven to keep me busy. Plus my naptime can be very time consuming J, but very important!


Till next time…KMS

Tuesday, March 19, 2013

No one promised me this would be easy right?! Well, the past couple weeks haven’t been. I have been neutropenic (aka can’t fight any infection) for a week or so now. According to my dad I am running on a ¼ of a tank. Literally, that is what it feels like. I still am doing my school work, making dinner and exercising, but everything just makes me feel tired. Some of it is the fact that my labs are UGLY, but the other part is the #1 side effect of all these medications is fatigue. In addition to being tired, I have had a busy treatment schedule. I have been going Monday, Wednesday, and Friday for the past couple of weeks. As of tomorrow I will be done consolidation. I cannot believe it- - another phase down! J I will have to wait for my labs to recover and then I can start interm maintenance. While I am excited to move onto the next phase, I still continue to take it one step @ a time.


Till next time…KMS

Sunday, March 3, 2013

I am moving right along with treatment, Friday was day 57. Believe it or not I am almost done consolidation. I will be moving onto interm maintenance. On Friday my APRN gave me the paths for the rest of the phases. I quickly looked at them, but honestly it is pretty overwhelming. I will continue to take it one step @ a time as it is much easier.

I have been keeping very busy with school. I had a test last week and another this week. It is nice to be busy. While I am keeping busy with the course work, I wish I was able to go to work or clinical. Some days I laugh because I remember going non-stop for the past couple years. Now I have a different routine. Soon enough I will be back into my old routine. I much prefer to be the provider and not the patient.
Today I was inducted into the Sigma Theta Tau International honor society. I guess hard work really does pay off J While I usually go from home to Smilow, today I was able to make the outing to go to the induction ceremony. The next big outing is graduation. The countdown is on- -only two more months! Today made that light at the end of the tunnel a little bit brighter.

Till next time…KMS
 
 
 
 

Friday, February 15, 2013

Today I started treatment again after my two week hiatus. It was a long day at the hospital but I had a good reward. I got the go ahead from my APRN to go into the loft. If you know me, you know how much I love to shop. I haven’t been into a store since November. Of course my bank account was thanking me, but the stores were sure missing me. I think the mall played “hallelujah” when I walked through the doors J Of course I made some nice purchases, with everything being conveniently on sale. So now I’ve had my fix for a little while. It was nice to get out; it felt like a typical mother daughter outing (which was much needed).

Well I am off to bed. I will have a busy weekend ahead of me. Plenty of schoolwork and treatment have my name written all over it.

Till next time…KMS

Monday, February 4, 2013

Today I graduated from radiation! I completed my 8 treatments and rang the gong. I had talked about ringing the gong all weekend (who wouldn’t be excited J). Come to find out there is a significance to the gong. The banging of the gong symbolizes the restoration of balance, harmony and life energy (http://www.mdanderson.org). It was a very exciting moment. It is another step in my journey. While I continue to take it one step @ a time it is nice to take time to recognize the milestones.

Here is the video:
 

Till next time…KMS  

Friday, February 1, 2013

Today was day 29 of consolidation. I now have two weeks off from treatment. This hiatus is specifically designed to let my labs recover. My labs are definitely not pretty right now (I know, I know I asked for this). Today was a very long day much thanks to Epic go-live. All my Yale friends know exactly what I am talking about. While long, it is over now and I am home on the couch watching tv. I am planning on doing some schoolwork and relaxing this weekend. It was a busy week going to radiation every day, but Monday is my last day of radiation! I am very excited J It is going to be a big day! Another milestone in this ALL journey.

Today I watched a You Tube video of a recent flash mob performed at Union Station in New Haven, CT. It is definitely inspirational. Being closer to free is something I am sure every cancer patient seeks. While being in remission is exciting, there is still many days of treatment left. I will continue to take it one step @ a time till I am closer to free. See the link below to watch the video.
 
Till next time…KMS

Tuesday, January 22, 2013

Cancer changes everything- - so I am learning. It changes you as a person, your relationships, your daily activities, your goals...life in general. Although change is hard, some of the changes are for the better. While I have changed, there are some things that will always remain the same. I am still the type-A and determined girl I have always been. While still head-strong, cancer has forced me to slow down and focus on the here and now. I have learned not to look to far ahead because it can be overwhelming. For now, I look to the end of consolidation and take every day one step @ a time.  

Today was the first day of the Spring 2013 semester. In my typical fashion I Skyped into one of my classes as I am not allowed to attend. I will continue to do school from home for the semester and I will walk in graduation this coming May. Although I see the light at the end of the tunnel it’s bittersweet. For the past 4 years or so, I’ve sat side by side with Kelly in class. Today I was at home- - there was no small talk during class, no sharing our dread as we listened to them go over the syllabus, and no laughing at our inside jokes. Although I am thrilled to be completing the semester via modern technology, I want to be sitting in the front row with Kelly (yes we are nerds). Although things have changed, many have not. We still do our routine study sessions with a whiteboard and all; it just takes place in another location- my living room. Although I am not there with her every Tuesday, she knows I will be by her side on graduation day in May. A small sacrifice for a big reward.
In addition to my APRN education, I’m getting insurance 101. I have to say, that is more stressful than my regular courses. While dealing with the insurance company can be stressful, I have my parents and Chris here to remind me not to worry about the small details.
While I continue to take it one step @ a time, there are little bumps along the way to make you realize that things do change. While there are changes, it is all about taking them in stride.


Till next time…KMS